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Just Us- Come Chat, Ask, Complain, Giggle and Share

June 2, 2005 - Thursday
2:02 PM to 3:02 PM (EST)
Guest Speakers: Lori Masi

Categories
FertilityIUIIVFMale FactorMiscarriagePCOS


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viviane hello
viviane ::unsure
viviane hi
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Lori_Masi
AFA_Patient_Advocate
Good Evening! Welcome I am Lori Masi The AFA's Patient Advocate - we will not have a speaker this eveining - it is just us - so ask away, share, complain whatever you wish!
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Lori_Masi
AFA_Patient_Advocate
Hello Jen and Viviane and Cathy Welcome!
Lori_Masi
AFA_Patient_Advocate
Cathy as I just mentioned to the others - it is just us tonight - so please feel free to ask questions, vent, complain, share whatever makes you comfortable....
Lori_Masi
AFA_Patient_Advocate
So Ladies talk to me - what is going on - are you all in treatment?
cathy Type hereI am starting my second ivf attempt tommorrow.
Lori_Masi
AFA_Patient_Advocate
Is anyone there? I had trouble logging on, so please let me know if you have received my messages!
Lori_Masi
AFA_Patient_Advocate
Cathy that's great - good luck! Where are you located?
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cathy I live in Kelowna, BC (Canada). I will be receiving my treatment in Vancouver.
Lori_Masi
AFA_Patient_Advocate
Can you all see my questions?
Lori_Masi
AFA_Patient_Advocate
Cathy you must be very excited! Are you happy with your program?
viviane :unsure hi
cathy I am using a different program this time around.
Lori_Masi
AFA_Patient_Advocate
Hi viviane! Welcome what's gooing on with you?
viviane well, I waiting to start an iui
Lori_Masi
AFA_Patient_Advocate
OH sometimes it feels good to make a change....
jensawyer02 hi
Lori_Masi
AFA_Patient_Advocate
V is this your first IUI? with or without meds?
Lori_Masi
AFA_Patient_Advocate
Hi Jen Welcome!
viviane first
jensawyer02 thank you
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viviane couldn't start for the past two cycles because of a cyst
Lori_Masi
AFA_Patient_Advocate
V you must be very excited as well - do you have any questions - I am not a doctor but have gone thru treatment for years....
viviane april's cyst was the size of a quarter, may's was the size of a half dollar
Lori_Masi
AFA_Patient_Advocate
Welcome bethann just jump in anywhere....
viviane i wondering would the cyst go away by the third cycle
viviane they gave me provera this past month and everything came out of me ::blush
Lori_Masi
AFA_Patient_Advocate
I don't know - did you ask why it is geetting bigger?
jensawyer02 i gave birth to a beautiful baby girl in February after a year of Clomid--but only two months with supervised fertility treatment (internal ultrasounds). this was due to croni annovulation. do you know what the percentages are of your fertility increasing or getting better after giving birth?
Lori_Masi
AFA_Patient_Advocate
So the cyst is now GONE?
viviane no, dr told me it should go away by the third cycle
jensawyer02 chronic i mean (chronic annovulation)
viviane don't know
viviane doc told me to go in when i get my friend again
Lori_Masi
AFA_Patient_Advocate
Jenn It might be better because now you have proven fertility
viviane to see if I ovulated and to run an Ultrasound BASELINE
cathy I will be 40 in July. My last attempt (November 04) produced 20 eggs. 15 fertilized. The embryo quality wasn't very good. On a scale of 1 to 5 I had one 2, three 3's and the rest were 4 or worse. I was wondering if it is possible that the quality of the embryo's can improve or is it probable that they will be as bad or worse?
Bethann My husband I underwent our 1st IUI today
Lori_Masi
AFA_Patient_Advocate
V that's sounds like a good plan what doctor are you seeing?
viviane I'm to go in on my next cycle for BASELINE ULTRASOUND, AND BEGIN IUI TREATMENT IF THE CYST IS GONE
Lori_Masi
AFA_Patient_Advocate
Cathy each cycle is different, so the next one could be better...
Lori_Masi
AFA_Patient_Advocate
B GoodLuck! we all hope you get good news!
jensawyer02 thank you---i have been hopeful--my last cycle was 33 days instead of the 4 or 5 months prior to fertility treatment--good to know these things because I never had to use any kind of contraception---now i may ::laugh
Bethann We have been trying for 1 yr. I have PCOS and he has had two vasectomy reversals. He has been taking clomid and we have gone from 7 sperm, 1 million to 10 million today.
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Lori_Masi
AFA_Patient_Advocate
B that sounds great!
viviane ::biggrin
Lori_Masi
AFA_Patient_Advocate
Welcome Dimic! feel free to just jump in.....
Bethann Living our lives by what cycle day it is has become so stressful
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Lori_Masi
AFA_Patient_Advocate
B I know I was in treatment for 10 years and it consumed my life
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VIVIANE IM BACK
jensawyer02 stay strong--all of you---it is worth it---my little girl who is sleeping soundly in her crib right now is proof of that!
Lori_Masi
AFA_Patient_Advocate
Welcome Kassie! Just jump in anywhere.....
Kassie Thanks, not sure of the topic, though
Bethann My estradol level was 258 and I had 2 probable eggs and 4 possible eggs
Lori_Masi
AFA_Patient_Advocate
I am looking into adoption because I have unexplained uterine issues and I just can't do this anymore... but you never know....
VIVIANE SO WHAT ARE THE CHANCES OF CONCEIVING ON MY FIRST TRY, DOCTOR SAYS MY ONLY PROBLEM IS I DON'T OVULATE SO HE WILL GIVE ME GONAL -F FOR TREATMENT. I AM 32 YEARS OLD
Lori_Masi
AFA_Patient_Advocate
Kassie we don't have a speaker or topic it's jsut us girls shooting the breeze.....
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Lori_Masi
AFA_Patient_Advocate
V your chances are good at your age but everyone is different - this is so individualized from patient to patient
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Bethann My one concern is that I am taking Zoloft, shouldn't I wean myself from this drug
Lori_Masi
AFA_Patient_Advocate
Welcome Tracy it is just us girls tonight so feel free to jump in anywhrere
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Tracie_CA Hi everyone!
VIVIANE DOC SAYS HE DOESN'T THINK THERE IS A PROBLEM WITH ME CONCEIVING ON MY FIRST TRY, EVERYTHING ELSE WITH ME IS NORMAL AND HEALTHY
Lori_Masi
AFA_Patient_Advocate
B I would - I have arthritis and always go off everything before a cycle
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Lori_Masi
AFA_Patient_Advocate
V that's good!
Lori_Masi
AFA_Patient_Advocate
dimic and nomo welcome - it's just us so feel free to jump in anywhere
Bethann do you know what level my progesterone should be when I go next thursday that would likely indicate a pregnancy
nomo ok thanks
Lori_Masi
AFA_Patient_Advocate
tracie what's going on with you?
nomo question - my doctor just recom. PGD after our next retrival to try to get some answers - anyone out there have it?
VIVIANE YOU SHOULD HAVE SEEN MY FACE WHEN I WENT IN MY FOR MY BASELINE ULTRASOUND, EVERY DOC IN THE CLINIC WAS EXCITED FOR ME JUST TO FIND OUT THAT I STILL HAD MY CYST THIS MONTH ALSO. I CAME HOME TO CRY, EVEN THE DOCTOR WAS SAD, HE SAID AN IUI CANNOT BE STARTED WITH A CYCST IN THE WAY
Lori_Masi
AFA_Patient_Advocate
I never have but I hear alot of positive things about it
Lori_Masi
AFA_Patient_Advocate
that last response was to Nomo
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Tracie_CA Well, I have PCOS, just went back on Metformin taking a year, then off a year, so it's killing me today....but DH's motility just came back at 0% week before last, so he has appt with fertility urologist...another let down obviously for us....
Lori_Masi
AFA_Patient_Advocate
V it is better in the long run to wait
Bethann Tracie, we have had great success with my husband taking Clomid
Lori_Masi
AFA_Patient_Advocate
Moestaz welcome it is just us tonight so feel free to jump in anywhere
moestaz ok
nomo Tracie
VIVIANE YES I BELIEVE SO, DOC AND HUBBY AGREE BETTER SAFE THEN SORRY SO THEY CONFORT ME IN THAT SENSE
nomo my husband got very bad fertility results from our doctor
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Tracie_CA
nomo but has been taking antioxidants for 3 months now
nomo and he went from a fertility score of Poor to good
Lori_Masi
AFA_Patient_Advocate
Tracie I'm sorry to hear that - but a fertility urologist can do alot so don't give up
Tracie_CA but, do they give Clomid for motility?? Or just for low count?
Tracie_CA I thought it was just for low count??
Tracie_CA His count is really high (they said almost abnormally high for some reason), but the motility is 0
VIVIANE SO, ON THAT NOTE, CAN YOU ALL PRAY FOR ME, I SHOULD BE GOING BACK TO TRY AGAIN SOMETIME THIS MONTH, I BELIEVE THE 14TH
nomo The antioxitants I believe help a bunch of things - he is on Proceptin - which has a website if you want to check it out\
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Tracie_CA My prayers are with you Viviane!
Lori_Masi
AFA_Patient_Advocate
nyiap welcome it is just us this evening so feel free to jump in anywhre - I am here by myself so give me a few minutes to answer everyone
Bethann Tracie, we had only 7 single sperm 2 months ago to 1 million 3 weeks ago to 10 million today. He has also been taking Theralogix vitamin recommended by his urologist. we were told it was for motilitiy as well
VIVIANE THANK YOU TRACIE
Tracie_CA hmm, that's good to hear!....I was worried there was nothing they can do for him
Tracie_CA we've been at this for 5 years, so it's almost a "relief" to find out what's going on,
Bethann Keep your chin up. I was prepared today to hear that we did not have enough for IUI
Lori_Masi
AFA_Patient_Advocate
You guys are great - you don't even need me LOL
Tracie_CA In the mean time, the dr wants me ready for IUI...so back on the metformin, so hopefully I will be ready again when he is....
Bethann I hate that you have just now been referred to a fertility urologist. I am lucky and have an aggressive fertility doc
moestaz i am going to a fertility specialist for the 1st time next week. we've been trying for a year and had a miscarriage. i just can't stand it every month when we've done evrything by the books and then a no pregnant result
VIVIANE LORI, MY DOC IS DR. "Z' IF YOU KNOW WHO THAT IS
Tracie_CA Well, we thought the only problem was me....
Bethann I have been taking Metformin as well. I am taking 1000mg twice a day
Tracie_CA we haven't been seeing the RE very long....she is great
Lori_Masi
AFA_Patient_Advocate
V in CA?
Tracie_CA The metformin is killing me....
VIVIANE NO, HE IS IN NY
VIVIANE ZAPANTIS
moestaz why is it killing you tracie?
Bethann Tracie, it will pass just stick with it.
VIVIANE HE IS GREAT
Lori_Masi
AFA_Patient_Advocate
DR Z in NY - I'm stumped who is it?
Lori_Masi
AFA_Patient_Advocate
OH yes I know him - he is very good!
Tracie_CA Well, I took it for a year last time and it never seemed to get better...just worse....but the other option is expensive injections, so I'll stick with the metformin for now
nomo we've been at it for 4 years - 8 IUI's and now 4 fresh IVF and 1 frozen - we have one IVF try left - doctor would like to do PGD so he can see if the embryos look good outside but there may be an issue that he cant see
Bethann Lori, do you know what my progesterone level should be next week, 1 week after IUI
nomo my husband had a verococyle surgery when we first started out
jensawyer02 i took metformin with Clomid and it took awhile and a higher dose of both but it worked
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VIVIANE HE IS REALLY INVOLED WITH FOLLOWING UP WITH ME AND CALLS ME EVEN LATE TO LET ME KNOW WHAT TO DO NEXT
Lori_Masi
AFA_Patient_Advocate
B i believe >20 (greater than 20)
Tracie_CA that's encouraging jen...always good to hear!
Bethann I take metformin and Clomid 100mg
Lori_Masi
AFA_Patient_Advocate
V that's great it is so important to feel cared for
VIVIANE HE SUGGESTED THAT I GO STRAIGHT TO INJECTABLES FOR MY TREATMENT BECAUSE OVULATION KITS DON'T WORK FOR ME IF I TAKE CLOMID
jensawyer02 keep with it---you will appreciate the end result even more!!! (the positive end result)
VIVIANE DO THE INJECTIONS HURT ALOT?
nomo did we disconnect somehow
Lori_Masi
AFA_Patient_Advocate
V I never liked the ovulation kits because I was always afraid I was reading it wrong
Lori_Masi
AFA_Patient_Advocate
nomo I see you
VIVIANE MY TELL ME I'M ALWAYS OVULATING::biggrin
Bethann I have an ultrasound on day 13 and follow with an HCG injection on day 14
VIVIANE WHAT A WAIST OF MONEY, I HAD BOUGHT TWO MONTHS WORTH
VIVIANE GOOD LUCK BETH
Bethann then today day 15 IUI
Bethann thanks viv!
Bethann In some ways I have felt alone
VIVIANE I CAN'T WAIT FOR MY IUI
VIVIANE MY WHOLE FAMILY CAN'T WAIT
Bethann Everyone around me is pregnant right now. My Mom came with us today. I was so glad she was there
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Lori_Masi
AFA_Patient_Advocate
v once you get used to them they are not bad especially the sub Q injections
Bethann I am 33
Bethann Lori do you have any suggestions for referance material
VIVIANE I'M TIRED OF PEOPLED ASKING ME WHEN AM I HAVING A BABY AFTER TWO YEARS MARRIED, I GET SAD AND FEEL INCOMPETANT THAT I CAN'T GIVE THEM AN ANSWER AS TO WHEN
Lori_Masi
AFA_Patient_Advocate
B your chances are good at 33! Hang in there
VIVIANE OKAY,
Tracie_CA We always answer that "We're working on it!"
Tracie_CA and leave it at that
nomo v- i know the feeling
Bethann I second that
VIVIANE I COME HOME AND WRITE IN MY JOURNAL
Lori_Masi
AFA_Patient_Advocate
B what specifically are you looking for?
nomo i have gotten mean and say "im infertile" that shuts them up
jensawyer02 but you really want to say "go away" or worse!!
Bethann We have only been married a year and get the same comments
VIVIANE LOL NOMO
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Bethann I don't know exactly, just something similar to my situation
nomo you would think with the amount of folks going through it folks would wise up
Lori_Masi
AFA_Patient_Advocate
Welcome Yola it is just us tonight feel free to jump in anywhere
nomo i NEVER ask anyone that question
nomo whats worse is when you know you have gained weight from the injections
Bethann Its funny it seems everyone else but you is able to get pregnang
jensawyer02 v---i did that too---then I went to Barnes and Noble and they have a journal with different colors of some sort of construction papaer and i would come home and according to how I was feeling I would pick a color tear it out and put it in a box as to get rid of it and be free of it===til the next day
nomo your procedure has failed and yet someone asks if you are pregnant
VIVIANE YOU KNOW, i NOW TELL THEM WELL, SINCE YOU ARE SO WANTING TO KNOW, WHEN THE BABY SHOWER COMES AROUND I BETTER SEE YOU THERE WITH A GIFT SO RIGHT NOW YOUR NAME IS BEING ADDED TO THE LIST OF PEOPLE WHO ARE WAITING FOR THIS BABY. LOL
Lori_Masi
AFA_Patient_Advocate
Don’t forget to please call the AFA Toll Free Support/Referral Line at 888-917-3777 for information, a referral in your area or support. You can also e mail me at LoriattheAFA@aol.com. Looking forward to hearing from all of you! Lori Masi – AFA Patient Advocate
nomo LOL V
Tracie_CA LOL viviane
nomo one of the cafeteria guys at work once asked me when I was due - i wanted to put his face on the grill - LOL - instead I went to my desk and cried
VIVIANE THEY SAY, OH I WILL BE THERE!
cathy can anyone tell me if it is safe to use AHA's and BHA while TTC or during pregnancy?
VIVIANE LOL
VIVIANE AWWWW SORRY NOMO
Lori_Masi
AFA_Patient_Advocate
Cathy AHA &BHA??
nomo B- I know how you feel - even all of my infertility friends have gotten pregnant
VIVIANE MY SISTER HAS TWO BABIES
VIVIANE THAT MAKES ME VERY HAPPY AND SAD
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Bethann three people I know are on their second pregnancy in 1 year
VIVIANE GEEES
Lori_Masi
AFA_Patient_Advocate
Nomo I second that not only all my freinds but my neighbors too so I have to see this everyday
Tracie_CA My sister just had #4....the entire time she was pregnant, I had to hear how it was "an accident" and how she didn't want to be pregnant, and didn't want another child....
cathy Alpha Hydroxy Acid and Beta Hydroxy Acid. I have really horrible acne and use them both on my face. It's the only thing that seems to work.
VIVIANE HEY MINE TOO TRACIE
Tracie_CA I would get mad and tell her children aren't "accidents" by no means, and I'd appreciate it if she wouldn't talk like that around me
Bethann It is funny how they were not trying
nomo Tracie - that is the worst - and very insensitive for her to discuss with what we are going through
Lori_Masi
AFA_Patient_Advocate
Tracie i'm so sorry that is so insensitive
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Tracie_CA Sadly, I avoid her now, I don't want to hear how she can't stand her kids
VIVIANE SHE GOT MAD AT ME BECAUSE I TOLD HER I CAN'T WAIT FOR MINE AND SHE SAID "SO THAT MEANS YOU ARE NOT GOING TO HAVE TIME FOR MY KIDS" HOW SELFISH
nomo T- dont blame you
Lori_Masi
AFA_Patient_Advocate
Cathy Ask you doc but I would stop everything
Tracie_CA OMG...My sister said the same thing! "Does that mean you won't be shopping for my kids anymore once you have your own?"
nomo on another note
VIVIANE EXACT WORDS FROM MINE
nomo is anyone doing acupuncture or herbs with treatment
VIVIANE DO WE HAVE THE SAME SIS, LOL
Tracie_CA LOL...viviane
nomo i have just started herbs - and honestly I would rather take the shots - lol
Bethann no we have not tried herbs
Tracie_CA My DH is taking herbs,
Tracie_CA and keeps trying to get me to, but I haven't
Bethann The theralogix vitamin is the only thing
nomo at this point Id stand on my head if it would work
VIVIANE SHE EVEN LEFT THE HOUSE BECAUSE I TOLD HER WELL I WON'T HAVE TIME BUT I WILL SEE THEM FROM TIME TO TIME, SHE SAID HOW CAN I SAY THAT AND LEFT, DIDN'T SPEAK TO ME FOR 2 WEEKS
Bethann Theralogix has a web site
nomo honestly it is all in chinese - not even sure what I am taking
Bethann family!!!!
Lori_Masi
AFA_Patient_Advocate
V ask her how she can be so insensitve to your needs and you walk out and don't talk to her for 2 weeks
Bethann My husband has two children and we have been told that we should be happy that we have them
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Bethann And then you get all the "if it is meant to be"
Tracie_CA I just remind myself...It's OUR dream, it's what WE want...not what everyone else wants or thinks that matters
Lori_Masi
AFA_Patient_Advocate
Chriserm Welcome it is just us tonight so feel free to jump in anywhere - we have 10 minutes left
VIVIANE SHE TRIED COMING BACK TO ME SAYING, YOU KNOW, "I'VE HAD TWO C-SECTIONS AND I DON'T WANT ANYMORE KIDS, I DID NOT TIE MY TUBES IN CASE I HAVE TO CARRY FOR YOU" I DID NOT LIKE HER TONE ON THAT
Bethann viv that was just rude
Tracie_CA
nomo V- not nice of her -
nomo would she actually carry a child for you?
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Lori_Masi
AFA_Patient_Advocate
V she can tie her tubes and still carry for you so tell her to inform herself of the facts first
nomo or is she just in for a martyr award
VIVIANE SHE SAID SHE WOULD
Tracie_CA My mom said she would! God bless her!
VIVIANE I TOLD HER I WOULD TRY EVERYTHING BEFORE I BOTHER HER WITH THAT, EVEN ADOPTION
nomo Bethann - checked out the site - looks like what my hubby is taking
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Lori_Masi
AFA_Patient_Advocate
for her to carry she would be called a gesstional carrier and would need IVF which bypasses the tubes
nomo only ours is called proceptin
nomo V- what state are you and your sis in
Bethann nomo, i have heard of that has it been successful
nomo B- yes - results improved significantly in three months
Lori_Masi
AFA_Patient_Advocate
V you are in NY right - where is your sister?
Bethann I would love to keep in touch with you guys, my email is batarrigo04@charter.net.
VIVIANE MEANING IF WE ARE TALKING TO EACH OTHER YES, OR IN THE STATE THAT WE LIVE IN NEW YORK, LOL
Bethann NOmo that is great he has only been taking for 2 months and we already have great results
nomo DH had segmentation over 30% prior to using proceptin ( and now around 20%)
Bethann great!
nomo V- you cant do surrogacy in NY
nomo which is why I asked
VIVIANE MY EMAIL IS ELVT28@MSN.COM IF YOU WANT AN UPDATE ON MY IUI TRY IN TWO WEEKS
VIVIANE GOOD
VIVIANE LOL
nomo I think the child would have to be born out of state
VIVIANE IM HAVING THIS BABY, I KNOW IT
Lori_Masi
AFA_Patient_Advocate
B and everyone - one great easy way to stay in touch is by using the AFA's message boards plese check them out and post to each other there - we have many boards including peer support which would be perfect for all of you to stay in touch and I' m alway s on there too...
nomo Thanks lori
Bethann i did not know that
VIVIANE GREAT LORI
Bethann sounds great
nomo rubber ducky is another good site
Bethann what is that
nomo my email is noreen_mormando@hotmail.com
VIVIANE A RUBBER DUCK
nomo very imaginative - LOL
VIVIANE LOL
Lori_Masi
AFA_Patient_Advocate
I really want to see all of you there and let's stay in touch and support each other
nomo www.rubberducky.org
VIVIANE THAKS LORI, I REALLY DO HOPE EVERYONE HERE GETS BETTER AND THEIR DREAMS COME TRUE
nomo sorry rubber-ducky.org
nomo v- same to you and everyone else
Bethann THis has been great!
Bethann Let's keep in touch, I feel better to vent
Lori_Masi
AFA_Patient_Advocate
When you go to the home page put your cursor on message boards and you will see a drop down window just click on your choice - we also the medical message board where RE"s voulunteer their time answereing your medical questions - it is great!
nomo thanks lori
Bethann great, thanks
Bethann lori, what is next for you
Lori_Masi
AFA_Patient_Advocate
we only have a few minutes - so please let's all meet every few days on the message boards
Lori_Masi
AFA_Patient_Advocate
B I am looking into adoption from China!
nomo goodnight all
Lori_Masi
AFA_Patient_Advocate
Don’t forget to please call the AFA Toll Free Support/Referral Line at 888-917-3777 for information, a referral in your area or support. You can also e mail me at LoriattheAFA@aol.com. Looking forward to hearing from all of you! Lori Masi – AFA Patient Advocate
Bethann good luck, keep us posted
nomo lori - the rubber ducky site would be good for you
Lori_Masi
AFA_Patient_Advocate
We only have a minute left anything else?
nomo its adotpion support
nomo bye
Bethann Great luck to all, we will talk again!
Lori_Masi
AFA_Patient_Advocate
thanks I will check it out -
VIVIANE GOOD NITE. PLEASE KEEP INTOUCH , THANKS LORI
Tracie_CA good night everyone...keeping everyone in my prayers
Bethann Thanks lori
Bethann My prayers for all
Lori_Masi
AFA_Patient_Advocate
Good Night all please post on the boards, call and write!
Bethann good night
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Lori_Masi
AFA_Patient_Advocate
GOOD LUCK to ALL - see you on hte boards
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dimic Thanks Lori. Good night and good luck to all!
Lori_Masi
AFA_Patient_Advocate
Good Night All! Good Luck to everyone and my prayers and thoughts are with you all.....
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janne I'm so sorry that I missed tonight's session!!!
janne I heard it was wonderful.
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