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The How To of IVF

March 29, 2005 - Tuesday
2:09 PM to 3:09 PM (EST)
Guest Speakers: Mark Leondires, MD, Reproductive Medicine Associates of Connecticut

Categories
IUIIVFPGD


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Lisa_Rosenthal Good evening everyone, thanks for joining us this evening!
kwhite hello
local [332]  Topic: The How To of IVF- with Mark Leondires, M.D., (Medical Director of Reproductive Medicine Associates of Connecticut)
Orly Hi Lisa
Lisa_Rosenthal Hi Orly, good to see you. Where did you all hear about the session this evening?
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kwhite i received an e-mail from AFA
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Lisa_Rosenthal Thanks to all of you for joining us this evening. If you have any topics that you would like to see presented, please let me know, I book the topics and I welcome the input.
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localhost [2009]  touser Please call our toll free hotline to ask our patient advocate for doctor referrals in your area. That number is: 888-917-3777 and our patient advocate is Lori Masi.
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Lisa_Rosenthal Is everyone here in treatment?
pfd yes. just finished first IVF cycle.
Lisa_Rosenthal How did it go pfd?
pfd unsuccessfully
kwhite getting ready to start IVF #1 in May 2005
Lori_Masi
AFA_Patient_Advocate
Welcome All! Please call the AFA Toll Free Support/Referral Line at 888-917-3777 for information, a referral in your area or just some good ol fashioned support. Looking forward to hearing from all of you! Lori Masi – AFA Patient Advocate
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pfd it seemed to have gone well. I responded well to the meds. I had a good number of mature eggs and transferred three high quality embryos. So except for the outcome, the experience was positive (I think those are good signs)
Lisa_Rosenthal Our message boards are a great way to get support, not only from the doctors, but from each other as well.
Lisa_Rosenthal pfd, you have a wonderful attitude! How refreshing.
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pfd I am trying my best. thank you, Lisa.
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Lisa_Rosenthal The conference on April 17 is a great opportunity to hear many different speakers on many different topics and we actually reduced the price this year! If you all can make it, it would be so great.
Lisa_Rosenthal kwhite, how are you feeling about starting treatment?
sblm What is the ideal amount of mature embryos that should be transfered?
Lori_Masi
AFA_Patient_Advocate
I have to tell everyone that when I attended my first AFA Conference 8 years ago, it changed my life. I encourage everyone that can possibly make it - to attend!!
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kwhite pretty sad about that because I could not wait to actually get things going...
Lisa_Rosenthal kwhite, it's really hard to wait when you're ready to get going, any ideas from anyone about how to make the wait easier?
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Lori_Masi
AFA_Patient_Advocate
I always tried to stay as busy as possible so the time would pass quickly
kwhite Yes...any suggestions would be great! I have just been trying to prepare my body....get healthy
pfd pamper yourself
Lisa_Rosenthal sblm, that is on a case by case basis, depending on maternal age, embryo quality and many other factors. ASRM guidelines strongly suggest no more than 2 in most situations. If you would like to share more of your specifics, we can chat.
kwhite hmmmmmmmi thinki like the pampering idea best ::biggrin
pfd let yourself off the hook. dont do things you dont want to. keep stress to a minimum
Lisa_Rosenthal Ladies and gentlemen, I'm not sure where Dr. Leondires is, but hopefully he will be here soon. Until then, let's chat away. Also, keep in mind that our message boards are a GREAT place to chat like this.
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kwhite Thanks for the advice ::up ::up
pfd you cant have recurrent losses if you cant even reach implanatation. Doesnt that indicate a problem?
Lori_Masi
AFA_Patient_Advocate
Also, please don't forget to call the AFA toll free support line for info a referral or just to chat! 888-917-3777
Lisa_Rosenthal pfd, recurrent IVF failures, (I hate that term) are a reason for other types of testing.
pfd how many makes it recurrent? and what testing?
pfd Lori- I hate to hog the forum, but could I talk to you before my consult with the doctor. could you help me identify some questions to ask?
Lisa_Rosenthal pfd, that depends on the diagnosis, treatment type, medication cycle and your physician's approach. Definitley, you should be speaking with her/him about it.
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Lisa_Rosenthal pfd, this is what Lori lives for, right Lori? wink Call her.
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Lori_Masi
AFAPatient_Advocate
Pdf Please call me - I'm here Mon, Wed Thur and Fri 9-5 EST and Tuesday evenings 5 - 10 pm! Call me after the chat or tomorrow! Best time to get thru is after 1 pm
KRIS10E ANYON HERE TRYING INV ISCII? I THINK THAT IS HOW YOU SPELL IT?
Lisa_Rosenthal Welcome, everyone, how nice to see you all?
SK after how many IUI can u star an Invitro?
sblm Some clinic operate on a payment plan
Lisa_Rosenthal JenniferL, I just went broke. It wasn't the best system, it was just the only one that I had.
KRIS10E just wondering the success rate of this
local [332]  Topic: The How To of IVF- with Mark Leondires, M.D., (Medical Director of Reproductive Medicine Associates of Connecticut)
sblm My doctor did the ICSI, it was successful as far as fertolizing my eggs.
KRIS10E were the injectables more than regular inv- i am so nervous! did you get preggo?
pfd my doctor recommends assisted hatching routinely. is that common practice?
JenniferL "going broke" is definatly something we are very scared of. I just don't know if I could stop if the first try didn't work. But the prospect of that much money being involved and it not working would completely break my heart.
julie71 My husband and I are currently going thru our 1st cycle we have had 2 failed transfers. We are using our savings to get thru. Most of my meds however for the initial were given to me by my clinic which saved us several hundreds of dollars. ALso, you can claim some of this on your tax return.
KRIS10E NErvous about injections- anyone in here have advice- are they really that bad to give yourself?
Lori_Masi
AFA_Patient_Advocate
Kris there are so many factors that contrubute to success the big one is your age
pfd they arent bad at all. it was really easy adn manageable.
KRIS10E age is 31 lori
JenniferL How does a plan like that work? Is it like a monthly loan note?
KRIS10E really pdf? that makes me fell a little better
Lisa_Rosenthal Jennifer, it is so hard and so personal. It's really difficult that the money factor has to be considered in our building a family
pfd it was a breeze. the hardest part is the 2 ww. the process itself was not nearly as daunting as I anticipated. take deep breaths
JenniferL Lisa, I completely agree.
localhost [2009]  touser Family Matters: The National Fertility and Adoption Conference 2005 is taking place at the Grand Hyatt in New York City on April 17! Please join us for 8 keynotes, over 35 workshops, and a large exhibit hall. We are lucky enough to have the top professionals in the field, including Dr. Serena Chen!
KRIS10E ok pdf- there are horror stories about it and i am really gettimg myself upset- thanks
sblm What is the 2ww pfd?
Lori_Masi
AFA_Patient_Advocate
Kris at 31 you have a very good chance of success and self adminisstered injections are not too bad - the sub Q are like a needle prick and the IM are alittle worse - but bearable - after you inject put some ice!
SK in Jamaica and invitro with the best specialist run for US5,000.oo us
pfd 2 week wait.
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localhost [2009]  touser Family Matters: The National Fertility and Adoption Conference 2005--- April 17 in NYC--- over 80 professionals in the field, 40 workshops, 8 keynotes, exhibit hall--- lower price of admission this year! Check it out on our home page....
KRIS10E how is the egg retrieval? anyone go through that>
KRIS10E ?
JenniferL Wow SK, I was told around 6,000US per try by my ob/gyn. But he tends to be very off when it comes to accuracy of how much certain treatments cost. So I have a funny feeling it will be much more than that.
kwhite JenniferL....yes it is a loan that you make monthly payments on. We will be borrowing approx. $20,000 which will cover 2 fresh cycles and 2 FET and some meds. Payments can be made over 5 years i think
Lori_Masi
AFA_Patient_Advocate
Guys anytime you need some encouragement or just to talk feel free to call
Lisa_Rosenthal The needles are scarier than they look. Of course, it did take me counting to 10, ten thousand times to stick myself- that amounts to about 10 minutes. and then it was really fine.
julie71 Mine was not painful at all. They gave me a mild sedation. When it was over I didn't think they had done anything. You just have to keep yourself relaxed and think positive
Lori_Masi
AFA_Patient_Advocate
Egg retreival is not bad you are semi asleep
SK here is $5,000 plus obviously the time u have any consultation, I know this doctor has done for non residents invitro
pfd the egg retrieval was not so bad and I was sick with at 102 feverso I think I can say that.
pfd LIsa, Lori , do you think being sick the week of my ER/ET had anything to do with the outcome? is there any research?
Lori_Masi
AFA_Patient_Advocate
That's what my mother asks me - who I should call - and I tell her I have to call myself!
SK and IUI cost only 300us
KRIS10E you guys are making me feel so much better about this!
Lisa_Rosenthal KRIS, I kid you not. And yes, it was each time, but it got done. We infertile can do anything!!
Lori_Masi
AFA_Patient_Advocate
I had abad cough once and was sure I would cough out the embryos but I did get pregant - my problem is staying pregnant!
KRIS10E i have learned that i am stronger than i ever thought with this
Lisa_Rosenthal pfd, there has been so much research- your being sick, mildly- not the rip roaring flu with a 105 fever- will NOT DO ANYTHING!!
triciaivf1 Where is the doctor?
JenniferL See I was suprised that my ob/gyn didn't even suggest trying IUI. He went straight to talking about IVF. I have only been on 4 cycles of clomid and we also have male factor. But IUI would be MY next choice.
KRIS10E jennifer - did the inv work for you?
Lisa_Rosenthal tricia, good question, Dr. Leondires is supposed to be here. Sorry he's not, but I'm having a great time. If you have medical questions that you really need answered, please post on our message boards, our doctors answer individual questions every single day.
sblm Is IUI a n option for someone with tube problems?
SK well, Jenn, my doctor first we run all the test, but he told me to go first for the IUI and after that we'll see
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Lisa_Rosenthal sblm, usually not, but it depends on the exact problem.
triciaivf1 okay thanks lisa
JenniferL So far we have yet to do anything other than clomid. But I was just suprised that my dr would jump straight to IVF.
localhost [2009]  touser Family Matters: The National Fertility and Adoption Conference 2005--- April 17 in NYC--- over 80 professionals in the field, 40 workshops, 8 keynotes, exhibit hall--- lower price of admission this year! Check it out on our home page....
julie71 Both of my tubes are blocked so my doc suggested we go straight to IVF
Lisa_Rosenthal julie, that makes perfect sense, no reason to waste your time.
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SK sblm, one of my tubes was removed and the left is healthy I have the 2 ovarys, with IUI 1st one I got pregnant
pfd i did, Lori. Thank you. That is reassuring that my hacking away didnt mess things up.
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Lisa_Rosenthal Welcome to all the newcomers! Jump right in. The doctor is not here, but we are having a lively conversation!
pfd Lori, do you get a lot of calls after the chats?
Lori_Masi
AFA_Patient_Advocate
NO and I made my doc crazy with my worrying! Thank God he was a doll!
sblm Does anyone have any issues with scar tissue. I don't know whether or not that is a serious factor for not having a positive IVF cycle
JenniferL That's what I think we will try next. I might have to find a new dr if my current one does not agree.
April Type here How about age as a factor, and "bouncing" FSH levels?
Lori_Masi
AFA_Patient_Advocate
PDF I get some - but you should get thru - call on my direct line 631-363-3148
sblm No I'm trying for child number one
SK Yes, try the IUI. it did 1rt one with positive for me,
julie71 has anyone gone thur a frozen transfer
pfd Okay. Lori, thank you.
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Lisa_Rosenthal April, what most of the most respected folks in the field say is that even one high fsh can indicate a serious ovarian reserve problem
KRIS10E april- is your fsh high or elevated?
Lori_Masi
AFA_Patient_Advocate
The only thing I have not done is the actual procedure myself - ask away!
Lisa_Rosenthal Ovarian reserve really reflects your ovum's age as opposed to your birth age, if that makes any sense.
April My FSH has ranged from 3.6 to 27 over the last year
KRIS10E april congrats! you are hope for me!!!
April thank you, Chris--at 31, your odds would be much better than mine
Lisa_Rosenthal April, that is so wonderful. And in the end, it takes one healthy egg. It is an unusual story, though.
localhost [2009]  touser Family Matters: The National Fertility and Adoption Conference 2005--- April 17 in NYC--- over 80 professionals in the field, 40 workshops, 8 keynotes, exhibit hall--- lower price of admission this year! Check it out on our home page....
April do you think it won't be worth trying for another lisa?
Lisa_Rosenthal April, I would definitely try if I were you, of course. How did you conceive this one?
April I think this pregnancy is a bit of miracle--I surprised both myself and my docs by getting pregnant on my first IVF
Lisa_Rosenthal pfd, what have your levels been?
pfd FSH levels? normal
April I only had 2 embryos
joanna Has anyone had a problem with embryo fragmenation?
April thank you lisa
SK april congrats, well and it happens, for me my First IUI was positve and my docotro was very surprise about it
julie71 Congrats April you are really lucky to have such a blessing with only 2 embryos. Good Luck
Lisa_Rosenthal Those of you who are able/interested in coming to the conference, please email me and we'll see what we can do about having you come free. The conference is awesome, if I do say so myself. More information in one place than you could ever hope to get.
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sblm What is the average amount of IVF cycles before a person conceives?
localhost [2009]  touser Family Matters: The National Fertility and Adoption Conference 2005--- April 17 in NYC--- over 80 professionals in the field, 40 workshops, 8 keynotes, exhibit hall--- lower price of admission this year! Check it out on our home page....
KRIS10E good question sblm
Lisa_Rosenthal cb1, thanks for joining us this evening, please jump right in!
local [332]  Topic: The How To of IVF- with Mark Leondires, M.D., (Medical Director of Reproductive Medicine Associates of Connecticut)
SK lisa, have AFA ever though to come to Jamaica for conferences
sblm Lisa will you supply your e-mail address
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Lisa_Rosenthal lisa@theafa.org Just please put something in the subject line about the conference so I don't toss the email.
Lori_Masi
AFA_Patient_Advocate
Lisa I'm going with you!
pfd talking to each other like this and you Lisa and Lori is great. would you consider doing these kinds of chats occassionally?
Lisa_Rosenthal SK, you have a couple of programs in Jamaica, is that correct?
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Lori_Masi
AFA_Patient_Advocate
PDF we do it every so often - we call it "Just Us"
Lisa_Rosenthal pfd, The AFA is here to provide you with what you would like. I would love to hear the topics that you are interested in and would like to hear aobut. I would be glad to schedule this. But again, the MESSAGE BOARDS are a great way to do this as well. I just love them.
SK lisa, yes u can come, Yes there is 2 Good Doctor in Infetility and they have been sucessfull,
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Lisa_Rosenthal SK, thank you for the lovely invitation. Lori, next winter, Jamaica!!!!
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April does it happen often that the doc does not show up?
JenniferL This may be a dumb question, but with IUI can only a RE do that? Or can my normal gyn do it?
Lori_Masi
AFA_Patient_Advocate
Unless by some miracle I have a new baby!
pfd Lori, are you going through this currently? If so how do you have the energy to give so much to all of us?
April Jennifer, I would go to an RE for IUI because they have the expertise to time it right, and also to do the sperm preparation and wash
Lisa_Rosenthal Jennfer, with all my heart, this is the best advice I can ever give you. Stick with your RE.
KRIS10E how long does it usually take for the whole inf process?
SK well , Jenn the doctor that did my IUi, he is an Ob/Gyn specialize in infertility
Lori_Masi
AFA_Patient_Advocate
Kris do you mean IVF?
JenniferL Thanks April..the reason I ask is that my insur. does not cover any thing other than diagnostic tests(ultrasounds, bloodwork) And they do not cover RE appts. I have yet to be referred to one for that main reason.
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Lisa_Rosenthal kris, that depends on the testing that needs to be done
Lori_Masi
AFA_Patient_Advocate
Depending on your tests and timing your cycle usually 3 months
localhost [2009]  touser Family Matters: The National Fertility and Adoption Conference 2005--- April 17 in NYC--- over 80 professionals in the field, 40 workshops, 8 keynotes, exhibit hall--- lower price of admission this year! Check it out on our home page....
April SK, I would go to a specialist, an RE, the expert on infertility--the chance at having a baby is something you don't want to mess with. Well, if you don't have coverage for an RE, you could do some IUI's with the OB. But I would still suggest moving onto an RE sooner rather than later, depending on your age
JenniferL Currently my ob/gyn does specialize in infertility. That is the main (and only) reason I go to him. I personally don't "click" with him and would prefer another dr. But thank you for the advice. Maybe I can work something out with $$ to allow me to proceed with an RE.
SK aprils thanks for the advise
Lori_Masi
AFA_Patient_Advocate
Jernnifer if you don't mind - how old are you?
JenniferL 26
Lisa_Rosenthal So, you all know that we do these online sessions once a week, you know that we have wonderful message boards that are moderated by physicians, and message boards that are just for us to hang out and chat on, and the conference. What else can the AFA do for you all?
pfd What do you think of assisted hatching and what about doctors that put you on their schedule with BCP's instead of going by your cycle? Is there a difference?
Lori_Masi
AFA_Patient_Advocate
At 26 you have some time - but if you don't conceive in 1 year you need to move on to an RE and more advance treatment
Lisa_Rosenthal JenniferL, that is unacceptable. I was there when I was 25. If you haven't conceived within a certain amount of time, you deserve wonderful, professional treatment.
April if you are 26, you have some time and an excellent chance of getting pregnant
SK Jenn, its better if you get the right Doc. to hear properly what ur saying to him
sblm I agree with SK Jennifer. That is one of the reasons why I left my previous doctor.
pfd If I stop my Progesterone in Oil tonight, does anyone know how long til I should expect my period? I am spotting alittle. Anyone with experience?
Lori_Masi
AFA_Patient_Advocate
PDF why are you stopping?
JenniferL Thanks Lisa (and everyone) so far we have been ttc since april 2003. Finally in December my ob/gyn put me on 50mg of clomid. Then after that didn't work, and I begged a lot, he increased the dose to 100mg this cycle. But after 50mg didnt work he kept suggesting IVF. Which I thought was a little too quick, since we had not even tried a higher dose of clomid
Lisa_Rosenthal pfd, I can't remember, anyone else know?
Lori_Masi
AFA_Patient_Advocate
I think you will get your period in 1-2 weeks
pfd anyone know anythign about this SHLAG technique of identifying embryos more likely to implant?
April Jennifer, had you had any more of a work up to figure out why you are not getting pregnant? Did you have an HSG done?
April going from clomid to IVF at 26 sounds a little extreme to me
Lisa_Rosenthal Anyone having issues with who to share your fertility issues with?
Lori_Masi
AFA_Patient_Advocate
Jennifer i don't reccomend more than 3-6 cycles of clomid
JenniferL So far the only thing I have had done was blood work, and external u/s, and an internal u/s. Pretty much all right before starting clomid. My dr does not monitor while on clomid , and when I suggested the HSG he pretty much changed the subject.
Lori_Masi
AFA_Patient_Advocate
pdf if I remember correctly
sblm I finally said something to my aunt whom I am extremely close with.
pfd my issue is with how to share so people know what you are going through and understadn if I withdraw but how do I still maintain some privacy so not everyone knows when we are doing each cycle?
Lori_Masi
AFA_Patient_Advocate
Jennifer you really need to see an RE call me and I will give you a referral in your area
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JenniferL Lori do you base the referral on my insurance company? Or just an RE in the area?
SK lisa , most of my family knows but not from my husband side, they only know about me having Hipothyroidims .
Lori_Masi
AFA_Patient_Advocate
Jen If you call me with the list in front of you we can weed it out
JenniferL That sounds great Lori, can you post your number again please.
SK lisa, sounds familiar to me
pfd exactly, Lisa. How do you turn back after opening the window alittle? They want it wide open. It is a hard balance to find.
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pfd I am very open to suggestions .
pfd how do you do it without hurting them>
Lisa_Rosenthal One of my best friends and I wrote a list of the ten least helpful things that people said, and a list of the ten most helpful things people COULD say
pfd what did you do with the list?
Lori_Masi
AFA_Patient_Advocate
For anyone that needs a referral or support please call me on the AFA toll free support line at 888-917-3777 or if you wish to call me tonight my direct line is 631-363-3148 and I will call you right back so you don't have to pay for the call
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Lisa_Rosenthal We published it about 8 years ago.
April Good luck to everyone, and thank you, Lisa and Lori
Lisa_Rosenthal how about a new list!
pfd where can ti be found?
Lisa_Rosenthal April, it was a pleasure, please join us again.
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pfd a new list sounds good.
jag Lisa - I would like to attend the conference; however, due to my work schedule and location, will not be able to get to NYC. Are any of the sessions going to be available on+ DVD, video, etc.?
TRD Lisa, is there way to obtain a copy of tonight's chat?
Lisa_Rosenthal jag, most likely we will not be doing that this year. In previous years, we have audio taped sessions, but it is proving to be difficult for this year.
Lisa_Rosenthal TRD, the session will be up on transcript in about 2-3 days.
SK lisa can u please writte ur email again for me, thanks
TRD Thanks
sblm Why are you advertising a conference for March 17, 2005?
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Lisa_Rosenthal I hate to yell, but any of you who have enjoyed this session, PLEASE USE OUR MESSAGE BOARDS. it's a great place for us all to meet inbetween sessions.
Lisa_Rosenthal sblm, a mistake.
localhost [2009]  touser Family Matters: The National Fertility and Adoption Conference 2005--- April 17 in NYC--- over 80 professionals in the field, 40 workshops, 8 keynotes, exhibit hall--- lower price of admission this year! Check it out on our home page....
local [332]  Topic: The How To of IVF- with Mark Leondires, M.D., (Medical Director of Reproductive Medicine Associates of Connecticut)
pfd are you talking about the medical boards where the doctor respond?
Lori_Masi
AFA_Patient_Advocate
Good night kris
SK Lisa,its grreat.::biggrin
Lisa_Rosenthal pfd, there are also peer support boards and other places for us to meet!!
Lisa_Rosenthal sk, thanks
Lori_Masi
AFA_Patient_Advocate
PDF we have alot of board including peer support
Lisa_Rosenthal my email address is: lisa@theafa.org
Lori_Masi
AFA_Patient_Advocate
Welcome All! Please call the AFA Toll Free Support/Referral Line at 888-917-3777 for information, a referral in your area or just some good ol fashioned support. Looking forward to hearing from all of you! Lori Masi – AFA Patient Advocate
Lisa_Rosenthal Thanks to all of you for joining us this evening, hope to see you next week as well.
pfd I have used a couple of them and have found them very helpful.
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Lori_Masi
AFA_Patient_Advocate
I meant good night all!
pfd thanks for everything, Lisa and Lori. You are both awesome.
SK Lori and Lisa , and all THANKS>
JenniferL Good night everyone, thanks for the very informative chat. It is great having a chance to talk with everyone. baby dust to all!!!
Lisa_Rosenthal pfd, right back at you, thanks to all of you. Best session in a really long time!!!
pfd Dr.Leonardies missed out.
Lori_Masi
AFA_Patient_Advocate
God Bless and good luck to all!
SK ::happy good night
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SK lori, its there a way for me to contact u via email, I live in Jamaica.
Lisa_Rosenthal kwhite, good night
Lori_Masi
AFA_Patient_Advocate
Good Night!
Lisa_Rosenthal SK, email me and I will pass it on to Lori, I think she missed your question.
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SK Good NIght. ::smile
Lisa_Rosenthal Good night SK, take care.
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beccab96 hello what time do were start the discussion. its now 8 20 cst?
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beccab96 ::wub ::lips hello
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